Just a little about where I am up to at the moment.
Im not sure whether I have mentioned before that I want to be a midwife. Is something that I have always been passionate about and so much so now. So many of my friends and family have been through so much in the last year that its made me want to help people even more. From IVF to sadly sleeping angels. I really want to do it. However trying to fit everything in is so hard at the moment.
Im doing a GCSE Maths and an IGCSE human biology from home which is hard as I am the worst person at maths EVER.
Im also doing a health science access course at college and its very full on. I now have 2 assignments on the go one for the sciences part and one for the psychology part. I also have 3 core skills booklets on the go. A maths one, an IT one and a personal development one. On top of all this I have the house and children and Im also still learning to drive. I dont have a lot of spare time at the moment and I know its going to be exceptionally difficult to get onto a midwifery course but i know that if I can get that chance I would really make a great midwife (and I dont big myself up about things normally).
Friday, 5 October 2012
No news is good news...
Well hello there,
Its been ages since I last updated on here and I'm exceptionally happy to say that its because there has been nothing to say. We seem to be on a nice smooth road at present and Jack is bobbing along quite nicely with everything.
He has now started at school. The first week was stressful on both myself and Jack. He cried when he got in the taxi every morning and I can honestly say that first time was one of the hardest things Ive had to do as a parent so far. Ive been there to hold the hands of all my children on their first days at school and been the first familiar face they have seen when they have finished for the day. To not be there for Jack was just heartbreaking. He was so frightened as well.
However, since then he gets in happily, almost skipping some mornings and he is loving school. He especially loves it when they do baking and is very proud to be able to show you what he has made. I will share a couple of pictures at the end of this blog of the things he has made so far.
He tells us every day about how his Kayleigh-May is and was very concerned explaining in his way that she had a sore ear.
At the moment he is going through a bit of a 'naughty' patch! He floods the toilets by switching the taps on and putting the plugs in. He will then stand at the door with his arms and legs spread to try and keep you from going in. Its naughty but we did have a little laugh last night when we got in bed that he thinks he can keep you out haha. I'm not sure whether maybe one of the children at school has a thing for flooding the sinks.
We have had a paediatric appointment since I last wrote and his EEG results have all come back normal. He said this doesn't mean that there is nothing going on but we are all happy to leave things as they are at the moment. He does still space out at times but its not quite as often as it was for that brief period. We will wait and see how that goes for now. We mentioned to them that every poo that Jack does is runny. They have put it down to a toddler diarrhoea that should sort itself out when he hits around 5. It has been tested in the past although that was back when he was 2. Again I'm happy to just plod along just for now as he is still being seen every 6 months anyway. They mentioned maybe checking his hormone levels because of his size but since he is in proportion again I think that it would be best to leave things. I really don't want him to have to be pumped with any kinds of drugs or medication when things are going OK.
His speech is still plodding along nicely. He has started to say 2 and 3 words in a row. He still cant use any fill in type words so doesn't say and, the, is or anything like that. Its literally 2 words. Its all wonderful progress though and more often than not these days I can understand what he is saying which is great for me but must make Jack feel so proud as well.
Its been ages since I last updated on here and I'm exceptionally happy to say that its because there has been nothing to say. We seem to be on a nice smooth road at present and Jack is bobbing along quite nicely with everything.
He has now started at school. The first week was stressful on both myself and Jack. He cried when he got in the taxi every morning and I can honestly say that first time was one of the hardest things Ive had to do as a parent so far. Ive been there to hold the hands of all my children on their first days at school and been the first familiar face they have seen when they have finished for the day. To not be there for Jack was just heartbreaking. He was so frightened as well.
However, since then he gets in happily, almost skipping some mornings and he is loving school. He especially loves it when they do baking and is very proud to be able to show you what he has made. I will share a couple of pictures at the end of this blog of the things he has made so far.
He tells us every day about how his Kayleigh-May is and was very concerned explaining in his way that she had a sore ear.
At the moment he is going through a bit of a 'naughty' patch! He floods the toilets by switching the taps on and putting the plugs in. He will then stand at the door with his arms and legs spread to try and keep you from going in. Its naughty but we did have a little laugh last night when we got in bed that he thinks he can keep you out haha. I'm not sure whether maybe one of the children at school has a thing for flooding the sinks.
We have had a paediatric appointment since I last wrote and his EEG results have all come back normal. He said this doesn't mean that there is nothing going on but we are all happy to leave things as they are at the moment. He does still space out at times but its not quite as often as it was for that brief period. We will wait and see how that goes for now. We mentioned to them that every poo that Jack does is runny. They have put it down to a toddler diarrhoea that should sort itself out when he hits around 5. It has been tested in the past although that was back when he was 2. Again I'm happy to just plod along just for now as he is still being seen every 6 months anyway. They mentioned maybe checking his hormone levels because of his size but since he is in proportion again I think that it would be best to leave things. I really don't want him to have to be pumped with any kinds of drugs or medication when things are going OK.
His speech is still plodding along nicely. He has started to say 2 and 3 words in a row. He still cant use any fill in type words so doesn't say and, the, is or anything like that. Its literally 2 words. Its all wonderful progress though and more often than not these days I can understand what he is saying which is great for me but must make Jack feel so proud as well.
Sunday, 5 August 2012
Holiday and last day of nursery
Well hello everyone,
We have been having a busy time here at the moment. Jack has finished nursery now :( I just cant put into words how grateful we are to the staff for everything they have done with Jack and Im sure they will miss Jack as much as we will miss them too. Its heartbreaking really but hopefully we can take Jack to see them sometimes.
His last day of nursery was so sweet. They had a little awards ceremony and each of the children won an award. Jack won explorer of the year as they said he was found doing a bit of everything. haha.
We have been on holiday as well. We went to Brixham in Devon. We all had a truly wonderful time. Its such a beautiful part of the country and we cant wait to go again. Jack threw himself into everything that we did. He LOVED the beach and even did some paddling in the sea. He did fall into the water at one point which was so funny, he has been telling everyone aahdooof (this is what he says for fall over), he also found it hilarious. He really enjoyed dancing in the club on the evenings. We also went on the golden hind full scale replica and he has been doing 'garrr noises all the time.
Ive got a couple of pictures to share with you. One is the last day of nursery. So cute, you can also see how his thumbs are affected by the hypermobility on this one. I also have one of him enjoying the beach. As always thanks for reading and checking in on us.
We have been having a busy time here at the moment. Jack has finished nursery now :( I just cant put into words how grateful we are to the staff for everything they have done with Jack and Im sure they will miss Jack as much as we will miss them too. Its heartbreaking really but hopefully we can take Jack to see them sometimes.
His last day of nursery was so sweet. They had a little awards ceremony and each of the children won an award. Jack won explorer of the year as they said he was found doing a bit of everything. haha.
We have been on holiday as well. We went to Brixham in Devon. We all had a truly wonderful time. Its such a beautiful part of the country and we cant wait to go again. Jack threw himself into everything that we did. He LOVED the beach and even did some paddling in the sea. He did fall into the water at one point which was so funny, he has been telling everyone aahdooof (this is what he says for fall over), he also found it hilarious. He really enjoyed dancing in the club on the evenings. We also went on the golden hind full scale replica and he has been doing 'garrr noises all the time.
Ive got a couple of pictures to share with you. One is the last day of nursery. So cute, you can also see how his thumbs are affected by the hypermobility on this one. I also have one of him enjoying the beach. As always thanks for reading and checking in on us.
Wednesday, 11 July 2012
The big reunion
Hi all
Well it was the big reunion on Monday of Jack and his K-M. I wasn't sure in the morning how much he understood of where we were going.
I was stood behind him when he saw her for the first time but he ran as fast as he could and sort of scooped her into his arms. It was one of the cutest things Ive ever seen in my life.
They spent the entire day playing together, most of the time on the bouncy castle. I have never seen a bond like it between 2 children of the ages they are and especially given their chromosome abnormalities. K-M has an equally unique abnormality, so this makes them a very special little 'couple'.
Whenever they walk past each other they stroke the others arm or touch their back and they really do seem that they fully understand each other. K-M seems to be able to understand what Jack needs and can speak for him at times. It really is quite an emotional and wonderful thing to sit and watch.
Jack also went to spend an hour at his new school yesterday. He was very shy a first but soon turned the charm on everyone that spoke to him. Each child from the unit is assigned a reception class that they will go to for any lessons or times that they feel they are able to. They told me yesterday that they have assigned Jack to K-M's reception class and her classroom support will be able to offer support to Jack too. They seem to realise that the bond they have is quite extraordinary and they will use it to settle them both into their new school.
I hope you enjoy looking at the pictures as much as I do. :)
Well it was the big reunion on Monday of Jack and his K-M. I wasn't sure in the morning how much he understood of where we were going.
I was stood behind him when he saw her for the first time but he ran as fast as he could and sort of scooped her into his arms. It was one of the cutest things Ive ever seen in my life.
They spent the entire day playing together, most of the time on the bouncy castle. I have never seen a bond like it between 2 children of the ages they are and especially given their chromosome abnormalities. K-M has an equally unique abnormality, so this makes them a very special little 'couple'.
Whenever they walk past each other they stroke the others arm or touch their back and they really do seem that they fully understand each other. K-M seems to be able to understand what Jack needs and can speak for him at times. It really is quite an emotional and wonderful thing to sit and watch.
Jack also went to spend an hour at his new school yesterday. He was very shy a first but soon turned the charm on everyone that spoke to him. Each child from the unit is assigned a reception class that they will go to for any lessons or times that they feel they are able to. They told me yesterday that they have assigned Jack to K-M's reception class and her classroom support will be able to offer support to Jack too. They seem to realise that the bond they have is quite extraordinary and they will use it to settle them both into their new school.
I hope you enjoy looking at the pictures as much as I do. :)
Thursday, 5 July 2012
EEG
Just a real quickie here to tell you that we have had Jacks EEG now. He was a little star throughout. He had to just sit and relax and watch tv and then she asked him to do different things at intervals. He had to close his eyes whilst she counted to 10 which was hilarious as he had a big smile on his face and was peeping the entire time! Then he had to blow a windmill for a while which again was funny as this child just has no puff for things like that, at one point he looked as if his head would explode. Then the bit I didnt like was when they had to flash lights into his eyes. He thought it was funny though!
Whilst we were there he did appear to have a couple of the vacant episodes so at least if it comes back clear I know that its just a behaviour of Jacks and then if they find something then I'll know its not just me picking at every sign of everything. Its so hard to know when to be worried and when not to be with Jack.
Jack had his birthday as well. he absolutely LOVED it, everything about the whole day. He looked amazed all the time. We took the children out to eat and his little face was so funny when the lights went off and they brought his cake out and sang happy birthday to him. I have a couple of photos to share of the small dude from his birthday. He is so proud of his little England kit. He really does love football!
Another quick line before I go. We are off to have a reunion with his K-M on Monday so I promise to update and blog about that and hopefully get permission from her mum to share a picture of the happy couple.
Until Monday then, thank you for reading :)
Whilst we were there he did appear to have a couple of the vacant episodes so at least if it comes back clear I know that its just a behaviour of Jacks and then if they find something then I'll know its not just me picking at every sign of everything. Its so hard to know when to be worried and when not to be with Jack.
Jack had his birthday as well. he absolutely LOVED it, everything about the whole day. He looked amazed all the time. We took the children out to eat and his little face was so funny when the lights went off and they brought his cake out and sang happy birthday to him. I have a couple of photos to share of the small dude from his birthday. He is so proud of his little England kit. He really does love football!
Another quick line before I go. We are off to have a reunion with his K-M on Monday so I promise to update and blog about that and hopefully get permission from her mum to share a picture of the happy couple.
Until Monday then, thank you for reading :)
Wednesday, 13 June 2012
Slacking again............
Why break the habit of a lifetime and blog when I should....so I say as I do each post. I am sorry for my terrible lack of posts.
Where to begin?!
I will start with the latest 'worry' that we have been having. Jack has been having a few strange little episodes for the last month I would say. Going back there has been times where I have mentioned to people that I haven't thought his eyes have looked quite right so actually this has probably been going on for a while longer. He is sometimes exceptionally hard to wake up in the morning. You have to physically lift him to rouse him and then it takes him ages to come round. The one particular morning I was due to visit my sister so had got him up to get everything ready before we dropped the other children at school, he just didn't look himself at all when he came round. Other than saying that I really don't know how to explain it. He didn't look like he was with us at all. I kept asking him to speak to me to make sure he was OK. We then started to walk to school and all of a sudden one of his nostrils started to bleed for no reason. It was very watery blood as well. I wiped it away and we carried on walking. Jack has a buggy board to stand on and though he does like it, he really does enjoy walking. I asked him if he wanted to get down and he said yes but when his feet hit the floor his legs wouldn't move. He spent the next hour very teary and then BAM he snapped out of it.
He has had a few more of these just lately. Not to that extreme but occasionally spending over an hour just whinging or having a burst of being naughty that doesn't quite seem normal really. He had an appointment with his paediatrician on Friday and they have referred him for an EEG done. We are just waiting on the appointment coming through for that now.
Since they are finding nothing physically wrong with his legs, I am starting to wonder whether maybe they are connected.
On to some good news. He is coming on so so well with his understanding of things. This will probably seem like such a small thing to people that have a child developing at an average speed but it made me almost cry when he sad it. He went to a birthday party on Sunday and he was given a piece of cake in his party bag. He was eating it when he got home and I asked him how it was. He replied with "nice". Like I say this is such a small thing normally but for him to say nice anyway is amazing but for him to be able to say it in the context it was needed and for him to be able to tell me that he is enjoying something is just the most rewarding feeling. I just cant explain how proud I am everyday of how well he is coming on.
I'm not sure whether I have mentioned anywhere in this blog that Jack made a very special friend at nursery, K-M, he absolutely adored her but she left. We have spoken of her everyday since then and he would show me his sad face. Through a mutual friend I have come into contact with her mum!! It absolutely made my day and certainly made Jacks when he received a video from her! It has to be the cutest thing that I have ever seen in my life. Both the video of her and Jacks reaction to it. He watches it over and over every single day and each day he says hi back to her and blows kisses. More importantly their love is to be fully rekindled as they have got a place at the same primary school!! Could true love blossom at such an early age??? Watch this space....;0)
Where to begin?!
I will start with the latest 'worry' that we have been having. Jack has been having a few strange little episodes for the last month I would say. Going back there has been times where I have mentioned to people that I haven't thought his eyes have looked quite right so actually this has probably been going on for a while longer. He is sometimes exceptionally hard to wake up in the morning. You have to physically lift him to rouse him and then it takes him ages to come round. The one particular morning I was due to visit my sister so had got him up to get everything ready before we dropped the other children at school, he just didn't look himself at all when he came round. Other than saying that I really don't know how to explain it. He didn't look like he was with us at all. I kept asking him to speak to me to make sure he was OK. We then started to walk to school and all of a sudden one of his nostrils started to bleed for no reason. It was very watery blood as well. I wiped it away and we carried on walking. Jack has a buggy board to stand on and though he does like it, he really does enjoy walking. I asked him if he wanted to get down and he said yes but when his feet hit the floor his legs wouldn't move. He spent the next hour very teary and then BAM he snapped out of it.
He has had a few more of these just lately. Not to that extreme but occasionally spending over an hour just whinging or having a burst of being naughty that doesn't quite seem normal really. He had an appointment with his paediatrician on Friday and they have referred him for an EEG done. We are just waiting on the appointment coming through for that now.
Since they are finding nothing physically wrong with his legs, I am starting to wonder whether maybe they are connected.
On to some good news. He is coming on so so well with his understanding of things. This will probably seem like such a small thing to people that have a child developing at an average speed but it made me almost cry when he sad it. He went to a birthday party on Sunday and he was given a piece of cake in his party bag. He was eating it when he got home and I asked him how it was. He replied with "nice". Like I say this is such a small thing normally but for him to say nice anyway is amazing but for him to be able to say it in the context it was needed and for him to be able to tell me that he is enjoying something is just the most rewarding feeling. I just cant explain how proud I am everyday of how well he is coming on.
I'm not sure whether I have mentioned anywhere in this blog that Jack made a very special friend at nursery, K-M, he absolutely adored her but she left. We have spoken of her everyday since then and he would show me his sad face. Through a mutual friend I have come into contact with her mum!! It absolutely made my day and certainly made Jacks when he received a video from her! It has to be the cutest thing that I have ever seen in my life. Both the video of her and Jacks reaction to it. He watches it over and over every single day and each day he says hi back to her and blows kisses. More importantly their love is to be fully rekindled as they have got a place at the same primary school!! Could true love blossom at such an early age??? Watch this space....;0)
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